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THE STILL POINT OF THE TURNING WORLD By: Emily Rapp
Penguin Press
March 2013
On Sale: March 7, 2013
272 pages ISBN: 1594205124 EAN: 9781594205125 Kindle: B008EKMCVI Hardcover / e-Book
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Non-Fiction
Like all mothers, Emily Rapp had ambitious plans for her first and only child, Ronan. He would be smart, loyal, physically fearless, and level-headed, but fun. He would be good at crossword puzzles like his father. He would be an avid skier like his mother. Rapp would speak to him in foreign languages and give him the best education.
But all of these plans changed when Ronan was diagnosed at nine months old with Tay-Sachs disease, a rare and always-fatal degenerative disorder. Ronan was not expected to live beyond the age of three; he would be permanently stalled at a developmental level of six months. Rapp and her husband were forced to re-evaluate everything they thought they knew about parenting. They would have to learn to live with their child in the moment; to find happiness in the midst of sorrow; to parent without a future.
The Still Point of the Turning World is the story of a motherβs journey through grief and beyond it. Rappβs response to her sonβs diagnosis was a belief that she needed to βmake my world bigββto make sense of her familyβs situation through art, literature, philosophy, theology and myth. Drawing on a broad range of thinkers and writers, from C.S. Lewis to Sylvia Plath, Hegel to Mary Shelleyβs Frankenstein, Rapp learns what wisdom there is to be gained from parenting a terminally ill child. In luminous, exquisitely moving prose she re-examines our most fundamental assumptions about what it means to be a good parent, to be a success, and to live a meaningful life.
 Media BuzzFresh Air - NPR - March 19, 2013
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