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The Still Point Of The Turning World
Emily Rapp
Penguin Press
March 2013
On Sale: March 7, 2013
272 pages
ISBN: 1594205124
EAN: 9781594205125
Kindle: B008EKMCVI
Hardcover / e-Book
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Non-Fiction
Like all mothers, Emily Rapp had ambitious plans for her
first and only child, Ronan. He would be smart, loyal,
physically fearless, and level-headed, but fun. He
would be good at crossword puzzles like his father. He
would be an avid skier like his mother. Rapp would
speak to him in foreign languages and give him the best
education.
But all of these plans changed when Ronan
was diagnosed at nine months old with Tay-Sachs disease, a
rare and always-fatal degenerative disorder. Ronan was
not expected to live beyond the age of three; he would be
permanently stalled at a developmental level of six
months. Rapp and her husband were forced to
re-evaluate everything they thought they knew about
parenting. They would have to learn to live with their
child in the moment; to find happiness in the midst of
sorrow; to parent without a future.
The Still
Point of the Turning World is the story of a mother’s
journey through grief and beyond it. Rapp’s response
to her son’s diagnosis was a belief that she needed to “make
my world big”—to make sense of her family’s situation
through art, literature, philosophy, theology and
myth. Drawing on a broad range of thinkers and
writers, from C.S. Lewis to Sylvia Plath, Hegel to Mary
Shelley’s Frankenstein, Rapp learns what wisdom there
is to be gained from parenting a terminally ill child.
In luminous, exquisitely moving prose she re-examines our
most fundamental assumptions about what it means to be a
good parent, to be a success, and to live a meaningful life.
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