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"Savior Siblings" and One Family's Battle to Heal their Daughter
Beacon Press
April 2010
On Sale: April 1, 2010
Featuring: Katie Trebing; Stacy Trebing; Steve Trebing
272 pages
ISBN: 0807072869
EAN: 9780807072868
Hardcover
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Non-Fiction Biography
On her first day on earth, Katie Trebing underwent a blood transfusion that would become the first of an expected lifetime of them. Diagnosed with a rare form of anemia, she would require a transfusion every monthβor she would die. But even with a steady supply of red blood cells, iron would eventually accumulate in her heart and liver, potentially destroying her organs by the time she reached forty. Faced with their daughterβs devastating prognosis, Stacy and Steve Trebing made the difficult decision to pursue the only known cure for Diamond Blackfan anemia: a bone marrow transplant from a genetically matched sibling. Using preimplantation genetic diagnosis (PGD) and in vitro fertilization, they would create a "savior sibling" for Katie, a lengthy and complex process rife with setbacks and pitfalls. Using the Trebingsβ dramatic and emotional story as an entry point, award-winning journalist Beth White-house delves into the complex bioethics of PGD, asking every important question, from whether it is defensible to select embryos for certain traits, to who will protect the interests of the "savior sibling" created by scientific manipulation. The Match is a provocative look at bioethical problems that are certain to become more pressing.
 Media BuzzThe View - April 12, 2010
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