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A Father's Journey With His Wordless Daughter
St. Martin's Press
February 2008
On Sale: February 19, 2008
288 pages
ISBN: 0312372426
EAN: 9780312372422
Hardcover
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Non-Fiction Memoir
Schuylerβs Monster is an honest, funny, and heart-wrenching story of a family, and particularly a little girl, who won't give up when faced with a monster that steals her voice but canβt crush her spirit.
When Schuyler was 18 months old, a question about her lack of speech by her pediatrician set in motion a journey that continues today.Β When she was diagnosed with Bilateral perisylvian polymicrogyria (an extremely rare neurological disorder caused by a malformation of the brain.), her parents were given a name for the monster that had been stalking them from doctor visit to doctor visit and throughout the search for the correct answer to Schuyler's mystery. Once they knew why she couldnβt speak, they needed to determine how to help her learn. They didnβt know that Schuyler was going to teach them a thing or two about fearlessness, tenacity, and joy.
Schuylerβs Monster is more than the memoir of a parent dealing with a childβs disability.Β It is the story of the relationship between a unique and ethereal little girl floating through the world without words, and her earthbound father who struggles with whether or not he is the right dad for the job. Β It is the story of a family seeking answers to a childβs dilemma, but it is also a chronicle of their unique relationships, formed without traditional language against the expectations of a doubting world.Β It is a story that has equal measure of laughter and tears. Ultimately, it is the tale of a little girl who silently teaches a man filled with self-doubt how to be the father she needs. Schuyler can now communicate through assistive technology, and continues to be the source of her father's inspiration, literary and otherwise.
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