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A Father's Journey With His Wordless Daughter
St. Martin's Press
February 2008
On Sale: February 19, 2008
288 pages
ISBN: 0312372426
EAN: 9780312372422
Hardcover
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Non-Fiction Memoir
Schuyler’s Monster is an honest, funny, and
heart-wrenching story of a family, and particularly a little
girl, who won't give up when faced with a monster that
steals her voice but can’t crush her spirit.
When Schuyler was 18 months old, a question about her
lack of speech by her pediatrician set in motion a journey
that continues today. When she was diagnosed with Bilateral
perisylvian polymicrogyria (an extremely rare neurological
disorder caused by a malformation of the brain.), her
parents were given a name for the monster that had been
stalking them from doctor visit to doctor visit and
throughout the search for the correct answer to Schuyler's
mystery. Once they knew why she couldn’t speak, they needed
to determine how to help her learn. They didn’t know that
Schuyler was going to teach them a thing or two about
fearlessness, tenacity, and joy.
Schuyler’s Monster is more than the
memoir of a parent dealing with a child’s disability. It is
the story of the relationship between a unique and ethereal
little girl floating through the world without words, and
her earthbound father who struggles with whether or not he
is the right dad for the job. It is the story of a family
seeking answers to a child’s dilemma, but it is also a
chronicle of their unique relationships, formed without
traditional language against the expectations of a doubting
world. It is a story that has equal measure of laughter and
tears. Ultimately, it is the tale of a little girl who
silently teaches a man filled with self-doubt how to be the
father she needs. Schuyler can now communicate through
assistive technology, and continues to be the source of her
father's inspiration, literary and otherwise.
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