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When Illness Turns Families Into Caregivers (United Hospital Fund Book)
Vanderbilt University Press
November 2004
On Sale: November 11, 2004
284 pages
ISBN: 0826514618
EAN: 9780826514615
Paperback
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Non-Fiction
Combining powerful personal stories with astute analysis
and recommendations, Always on Call reveals the hidden
struggles of the more than 25 million family caregivers in
the United States. While family members have always
provided care for one another, recent changes in health
care have placed tremendous new responsibilities on them—
responsibilities that, only a decade ago, were a routine
part of hospital care. The prevalence of chronic rather
than acute illness, trends toward shorter hospital stays,
increased outpatient care, and limited insurance benefits
for in-home care now leave family caregiving as the only
option for many Americans.
This book, first published in 2000 and now substantially
updated, presents an intimate look at the world of family
caregiving. The compelling narratives by caregivers capture
the intensity of the caregiving experience, while chapters
by noted health care professionals, many of whom speak of
their own experiences, analyze the impact of caregiving,
urge more professional advocacy on behalf of caregivers,
and offer insightful suggestions for building partnerships
for change and fostering improvement. This second edition
includes: - a new section on innovative caregiving programs
- new chapters on the financial impact of caregiving,
- caregiving as a workplace dilemma
- the added burdens of end-of-life caregiving
- clinician-family conflicts (and new approaches for
resolving them)
- new federal and state policy initiatives
- resources for families and professionals. Designed for family caregivers, health professionals,
administrators, pastoral care providers, policymakers,
patient and caregiver advocates, and human resource
professionals, Always on Call is an essential book for
understanding the current realities of family caregiving.
Equally important, it builds a compelling case for change. A United Hospital Fund Book
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