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Letters on Life, Love and Fragile X
Century UK
June 2006
On Sale: June 1, 2006
224 pages
ISBN: 1933102233
EAN: 9781933102238
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Non-Fiction Memoir
Fragile X syndrome (the most common known inherited cause of
mental retardation and autism) affects 1 in 4000 males and 1
in 6000 females of all races and ethnic groups. When Mary
Beth Busby's sons, Robert and Jack, were born in 1964 and
1965, Fragile X had not even been identified as a genetic
abnormality. By the time Megan Massey's sons Jack and Jacob
were born in 1989 and 1991, a few researchers had identified
it, but few pediatricians knew it existed. DEAR MEGAN takes
the form of intimate letters over the years between two
mothers of different generations, each with two Fragile X
sons. In its pages they reveal what it is really like for
families to have and care for abnormal and disabled
children. The two mothers met as active board members of
FRAXA, the Fragile X Research Foundation, which they both
joined to help fight for research to find a cure and help
their sons. Through their letters back and forth to each
other, they take us on their life journey into motherhood,
marriage, families, schools, health systems, politics, all
while caring for their four beloved sons and preparing for
their futures. DEAR MEGAN is an inspiring story of courage
and endurance, but also about the possibilities of life.
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