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"Savior Siblings" and One Family's Battle to Heal their Daughter
Beacon Press
April 2010
On Sale: April 1, 2010
Featuring: Katie Trebing; Stacy Trebing; Steve Trebing
272 pages
ISBN: 0807072869
EAN: 9780807072868
Hardcover
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Non-Fiction Biography
On her first day on earth, Katie Trebing underwent a blood
transfusion that would become the first of an expected
lifetime of them. Diagnosed with a rare form of anemia, she
would require a transfusion every month—or she would die.
But even with a steady supply of red blood cells, iron would
eventually accumulate in her heart and liver, potentially
destroying her organs by the time she reached
forty. Faced with their daughter’s devastating
prognosis, Stacy and Steve Trebing made the difficult
decision to pursue the only known cure for Diamond Blackfan
anemia: a bone marrow transplant from a genetically matched
sibling. Using preimplantation genetic diagnosis (PGD) and
in vitro fertilization, they would create a "savior sibling"
for Katie, a lengthy and complex process rife with setbacks
and pitfalls. Using the Trebings’ dramatic and
emotional story as an entry point, award-winning journalist
Beth White-house delves into the complex bioethics of PGD,
asking every important question, from whether it is
defensible to select embryos for certain traits, to who will
protect the interests of the "savior sibling" created by
scientific manipulation. The Match is a provocative
look at bioethical problems that are certain to become more
pressing.
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