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"A heartbreaking story, exquisitely told . . . Laurie
Strongin's integrity, humanity, and wisdom are an
inspiration to the rest of us."
?David Shenk, author of
Saving Henry is the
eye-opening and inspiring story of how far a family will go
to save the life of their child. Laurie Strongin's son Henry
was born with a heart condition that was operable, but which
proved to be a precursor for a rare, almost-always fatal
illness: Fanconi anemia. Deciding to pursue every avenue
that might provide a cure, Laurie and her husband signed on
for a brand new procedure that combined in vitro
fertilization with genetic testing to produce a baby without
the disease, who could be a stem cell donor for Henry. As
Laurie puts it: "I believe in love and science, nothing more
and nothing less."
Laurie and her husband endured
nine failed courses of the procedure before giving up. But
Saving Henry is also about hope. It is the story of
Henry, the feisty little boy who loved Batman, Cal Ripken
Jr., and root beer- flavored anesthesia, and who captivated
everyone with his spunk and positive attitude. When the
nurses came to take blood samples, Henry brandished his toy
sword and said, "Bring it on!" When he lost his hair after a
chemo treatment, he declared, "Hey, I look like Michael
Laurie became a fervent advocate for stem
cell research, working with policymakers and the scientific
community to bring attention to Henry's case and to the
groundbreaking research that could save many lives. Henry's
courage and bravery inspired nurses, doctors, friends, and
family. Saving Henry is the story of one family's
search for acure, and the long-lasting scientific impact
their amazing little boy has had.
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